Tomorrow we take Lyndan in to visit his neurosurgeon to review his MRI images and assess his progress since his brain surgery in March. For those of you that don’t know, Lyndan was diagnosed with a “Cavernoma” at his brain stem at the end of February 2012. We caught this after he experienced a sharp decline in his mobility and his vision went blurry, eye turned toward his nose, all within a 48 hour period. At first they diagnosed him with a tumor but that was changed with a second sent of MRI images that showed vascular images. One week later, he was being wheeled in for brain surgery. He bounced back quickly and was back to riding his bike a couple months later and was back at school as soon as he felt comfortable enough to do so… just a couple of weeks.
Even though he’s already had one follow-up appointment and they said he looked great, we haven’t seen any MRI images of his brain since the diagnosis. I want to be able to see that the Cavernoma is completely gone. I have a fear that it will return even though they were pretty confident that they got it all. If they got it all, then it’s gone. I just need that little extra reassurance I guess. Praying for good news tomorrow!
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